CREATE & MANAGE DATA
FURTHER RESOURCES
We have collated a number of useful resources on research ethics, consent and anonymisation.
Ethical guidelines for researchers
Ethical guidelines from the Social Research Association
Ethical guidelines from the Oral History Society
Ethics guide from the Association of Internet Researchers
RESPECT project - professional and ethical guidelines for the conduct of socio-economic research, funded by the European Commission's Information Society Technologies (IST) Programme
Methodological Issues in Qualitative Data Sharing and Archiving
Research Ethics Framework from the Economic and Social Research Council
Research ethics in art design and media
Statement of Ethical Practice for the British Sociological Association
The Research Ethics Guidebook: a resource for social scientists RDI project, section on consent for archiving & sharing
Data sharing
Data Sharing Review by Richard Thomas and Mark Walport, UK Ministry of Justice, 2008
Informed consent
Data protection issues relating to survey research - from the perspective of market research firms and survey data
Informed Consent and the Research Process - an ESRC Research Methods Programme project
Anonymisation
Anonymising Research Data - ESRC National Centre for Research Methods, Working Paper 7/06
Guide to Social Science Preparation and Archiving from the Inter-University Consortium for Political and Social Research
Timescapes Anonymisation Guidelines
Resources for Research Ethics Committees
Data Protection and Research Activity - University of Essex guidelines on conducting research within current data legislation, with particular reference to interaction with funding bids and how this may strengthen such applications
Ethics procedures and further information - a practical guide from Oxford Brookes University intended as an information resource on research ethics to assist with the process of applying for research ethics approval from a committee
Research and the Data Protection Act 1998 - advice from the University of Edinburgh
The Association of Research Ethics Committees - discussion forum, guidance workshops and a journal, Research Ethics
Unpacking the Moral Maze: Training researchers on Ethics and Ethical Practice in Social Science Research - resource from the Faculty of Social Science at Lancaster University
Resources for medical and health research
Data protection, informed consent and research - a British Medical Journal editorial on data protection, informed consent and research, with further links
Ethics and research governance - a Medical Research Council resource containing guidance on planning, or conducting, studies involving people who lack the mental capacity to give informed consent about taking part in research, which also covers the use of personal information by medical researchers, including patient data for which consent has not or will not be obtained
National Research Ethics Service - provides guidance on NHS ethics applications
The Information Centre - provides some NHS guidelines on the Freedom of Information Act, data protection and statistical and information governance