CREATE & MANAGE DATA

TRAINING RESOURCES

ETHICS & CONSENT

OVERVIEW

A combination of gaining consent for data sharing, anonymising and regulating access to data will increase the potential for making people-related research data more readily and widely available.

AREAS OF COVERAGE

  • Definitions: personal, confidential data and sensitive personal data
  • Legal and ethical issues
  • Informed consent and data sharing
  • Research Ethics Committees and data sharing
  • Anonymising data
  • Access control

RESOURCES AVAILABLE

  • PowerPoint presentation on 'Ethics & Consent Overview'
  • PowerPoint presentation on 'Consent - Practical'
  • PowerPoint presentation on 'Anonymisation'
  • Exercise 1: Consent - introduction
  • Exercise 1a: Consent - qualitative data
  • Exercise 1a Answers: Consent - qualitative data
  • Exercise 1b: Consent - focus groups
  • Exercise 1b Answers: Consent - focus groups
  • UK Data Archive model consent form
  • Exercises 2: Anonymisation - introduction
  • Exercise 2a: Anonymisation - qualitative data
  • Exercise 2a Answers: Anonymisation - qualitative data
  • Exercise 2b: Anonymisation - quantitative data
  • Exercise 2b Answers: Anonymisation - quantitative data

DOWNLOAD CONSENT & ETHICS RESOURCES (ZIP)

A QUICK GUIDE TO THE ARCHIVE  

1 of 10: We provide continuous access to the UK’s largest collection of digital research data in the social sciences
2 of 10: We hold thousands of data collections for social science research and teaching, quantitative and qualitative
3 of 10: Each of our data collections has a unique persistent identifier (DOI) that makes it easier to find and cite
4 of 10: We hold the only copy of many of the UK's large national surveys charting social research back decades
5 of 10: We are an established national archive at the forefront of managing, preserving, sharing and delivering data
6 of 10: We are certified to ISO 27001, the information security standard, and helped develop the Data Seal of Approval
7 of 10: We are a collaborative organisation supporting emerging and existing creators and users of data
8 of 10: We provide best practice guidance and training in managing and sharing research data
9 of 10: You won’t be able to find your family records on our site. You should visit a genealogical site instead
10 of 10: We don’t provide ready-made statistics, but using Nesstar you can view frequencies from popular surveys
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