Managing and sharing research data: focus on consent, confidentiality and disclosure

Date: Wednesday 2 December 2009

Location: Myddelton Conference Suite, LSE Rosebery Hall, 90 Rosebery Avenue, London, EC1R 4TY

Course leaders: Libby Bishop, Veerle Van den Eynden, John Southall

PROGRAMME

10.00-10.15	Registration and coffee
10.15-11.00	Introduction: data management and data sharing applied to research involving people as participants; legal and ethical aspects of data sharing (duty of confidentiality, data protection act, freedom of information act, data sharing obligations for Research Council-funded researchers, confidential and personal data definitions, ethical reviews); data management planning.
11.00-12.30	Group 1. Developing consent agreements for obtaining informed consent from participants  OR  Group 2. Dealing with confidential research information and anonymisation techniques to enable use and sharing of research data
12.30-13.15	Lunch
13.15-14.45	Group 1. Dealing with confidential research information and anonymisation techniques to enable use and sharing of research data  OR  Group 2. Developing consent agreements for obtaining informed consent from participants
14.45-15.30	Discussion and close